The Thyroid Trust
In 2010 I set up a support group in London for thyroid patients which I ran until 2014 and continued to chair for a while after that. After a break I recently became involved again as the group was threatened with closure and asked for my help to keep going.
Having secured funding, we are now in the process of setting up a new charity, The Thyroid Trust, to provide peer support and reliable information to people affected by thyroid disorders in London and beyond. My role as Director is to lead the team, organise our programme of events and develop the organisation.
This is a project which is close to my heart.
We still have some work to do before we register the new charity, it is early days, but we are on track with:
- events planned through until the end of 2018 with strong attendances, fantastic speakers and excellent feedback for all that have taken place so far
- a strong brand identity which we all really like and a fully functioning website
- a strong trustee board, constitution and full suite of policies and registries
- participation as registered stakeholders - and we have already been identified as key stakeholders - in the new NICE guidelines for thyroid disorders
- invitations to attend and speak at other events including the World Health Innovation Summit in Carlisle 2018
If you are interested in this work, or indeed if you or someone you know is affected by thyroid disease and you are looking for support, you can find out more on The Thyroid Trust website.
You may also like to visit my blog about my own experiences of hypothyroidism and the early days of establishing the group, Thyroid Hope. I'm' pleased to be largely well now and able to help others.
We are incredibly grateful to everyone who is so kindly supporting this project.
